Category Archives: Uncategorized

Rare Disease Day 2014

I am writing this post to promote “Rare Disorder Day”. There is a whole website devoted to this effort, and it is international in scope.  I’m including a link to the website below. Lately my daughter Deanna and I have … Continue reading

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When Narcolepsy Catches You off Guard – Guest Post by Deanna Lynne

This is another guest post by my daughter, Deanna Lynne. It is her perspective of events covered in my last post “Withdrawal”.  It’s 10pm and I have just gotten into bed for a good night’s sleep, or so I thought. … Continue reading

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WITHDRAWAL – When The Wheels Fall Off

I am writing this while I still feel the anger over incidents of this past two weeks. My anger is useless, and I am really trying to be rational about it, but when you are the mother of a child … Continue reading

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When Dystonia Attacks! A Typical Day in My Life – Guest Post by Deanna Lynne

  My name is Deanna Lynne. I’m 23 years old. I live with my boyfriend Justin and our cat Calypso. This is the first in a series of guest posts to my Mom’s Blog. My Mom has written about my … Continue reading

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T-Shirt $25, Photo Op with Arielle Kebbel $40, Kiss on the Cheek from Ian Somerhalder – PRICELESS!

Last year, when Creation Entertainment announced that they would be having a Vampire Diaries Fan Convention in Dallas on the weekend of August 17-18, I knew that this would be my daughter’s birthday present for 2013. As those who have … Continue reading

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Coping with Rare and Chronic Diseases – Part 2 of 2

I am grateful to have a daughter her handles her challenges with strength and grace, because I’ve had my own challenges with health during the past year.  Around the time that Deanna was being diagnosed with Dystonia, I noticed a … Continue reading

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Coping with Rare and Chronic Diseases – Part 1 of 2

It’s been over a year since I’ve written a post about my daughter, Deanna.  This is not because things have been quiet.  They haven’t.  It’s been a year of quiet struggle.  (By way of background, you can find my original … Continue reading

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My Husband’s Adventures with “Ben”

It’s been quite a while since I have posted here, and this post is NOT at all what I had planned for this weekend.  I have not posted anything since my daughter’s 21st birthday in August, and now there will … Continue reading

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Happy 21st Birthday to My Extraordinary Daughter

Today is my daughter’s 21st birthday.  She is not celebrating it the way we all would have liked. It has been 3 months since I last wrote a blog post.  These months have not been uneventful.  My daughter’s journey has … Continue reading

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Being an Ordinary Parent to an Extraordinary Child

Last week’s post was a tribute to the wonderful woman who was my Mother.  This week, I am writing about my own experience as a mother to the wonderful woman who is my daughter.  This is a long post so I … Continue reading

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